PANS / PANDAS UK Charity
- Community Inclusion and Activity
- Health and wellbeing
- Support group
Description
PANS (paediatric autoimmune neuropsychiatric syndrome) and PANDAS (paediatric autoimmune neuropsychiatric syndrome associated with strep) are devastating neuropsychiatric conditions that are currently poorly recognised, diagnosed and supported both medically and in schools. One estimate suggests that up to 1 in 200 children suffer from this condition.
- Resources for parents including diagnostic criteria and details of local support groups
- Resources for Medical professionals
- Resources for teachers and Schools
- Teacher training package
- Facebook group for parents/caregivers
- Facebook group for Young People age 12-17 with the condition
- Facebook group for Adults
- Links to further Research Advocacy and support from the charity
- Medical Guidelines
Type of provision
Targeted - Extra help for some people, usually after someone has made a referral
Contact information
- Phone:07425 856181
- Website:PANS / PANDAS UK Charity website
- Email:paula.scott@panspandasuk.org
Accessibility and adjustments
- Wheelchair access: No